From Here to There

From Here to There, 2014 is a personal meditation on the cycle of life and my deliberate act of seeking profound beauty in darkness.  Quietly pinching porcelain into 3000 delicate winged creatures, I embraced the time to ponder love, loss, and all that connects us to other beings.   I find myself squarely in the middle of my life—witnessing the growth of my children and the aging, and death, of my parents.  The rhythm of this cycle, despite moments of unsettledness and deep sadness, feels logical and natural.  In February 2014, that logic was radically disrupted by the death of a 23 year old student and friend following a surgical procedure to combat the complications of Ehlers-Danlos Syndrome.

In medicine, the term “zebra” is used in reference to a rare disease or condition.  Doctors are taught to assume that the simplest explanation is usually correct to avoid patients being misdiagnosed with rare illnesses.  Doctors learn to expect common conditions.

“When you hear the sound of hooves, think horses, not zebras.”

Ehlers-Danlos Syndrome is considered a rare condition and so EDS sufferers are known as medical zebras.